Moebius Syndrome Awareness

What is Moebius Syndrome?

According to the Moebius Syndrome Foundation, Moebius syndrome is a rare congenital, non-progressive form of facial paralysis combined with outward, to the side, eye paralysis. Individuals with Moebius syndrome typically cannot make facial expressions, and speech, eating, and lip movements may also be affected.

Moebius syndrome is present in roughly two to 20 cases per 1 million births. It also occurs equally in all populations, as all ethnicities and genders are equally affected. 

When is Moebius Syndrome Awareness Day?

As the birthday of Dr. Paul Julius Moebius, who reported features of this condition in 1888, Moebius Syndrome Awareness Day is commemorated annually on January 24.

What is the cause of Moebius Syndrome?

The cause of Moebius Syndrome is unknown, although the condition likely results from a combination of environmental and genetic factors. Researchers are still working to identify and describe specific genes related to this condition.

What are the Symptoms of Moebius Syndrome?

Some symptoms may include:

• Feeding, swallowing, and choking problems
• Sensitive and dry eyes
• Movement delays
• High or cleft palate
• Hearing problems and speech difficulties
• Weakness or complete paralysis of facial muscles
  • Lack of facial expression
  • Inability to smile
• Inability to move eyes back and forth

Treatment for Moebius Syndrome

Treatment methods will vary for each individual, but experts at Salus University’s clinical facilities can help with the treatment process.

How Speech-Language Pathologists (SLPs) Help

SLPs can address the oral-motor skills and coordination for speech and swallowing through a variety of techniques.  The team of SLPs at the Speech-Language Institute (SLI) can provide an individualized assessment, using evidence-based tools, to identify areas of strengths and needs.  SLPs can customize a treatment plan to address the goals of the family. For more information about SLI, visit salusuhealth.com/SLI.

How Optometrists Help

Optometrists can help patients with Moebius Syndrome by implementing eye drops into a patient’s routine to help combat a symptom of the condition; dry eye. The Eye Institute’s (TEI) Dry Eye Clinic focuses on the diagnosis and management of dry eye syndrome and can provide some relief. Surgery may also be an option to correct crossed eyes and protect the cornea. For more information about TEI, visit salusuhealth.com/TEI.

How Audiologists Help

Audiologists can assist with hearing difficulties that individuals with Moebius Syndrome may experience. Audiologists at the Pennsylvania Ear Institute (PEI) can provide hearing exams, evaluate hearing loss and provide hearing aids when needed. For more information on PEI, visit salusuhealth.com/pei.